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Survey to collect your lived experience ** The WHO seeks information ------------------------------------------------------------ Genetic Alliance and our partner, LunaPBC, are involved in a very timely and accelerated project to collect data from all over the world for the World Health Organization. About 20,000 people helped t refine the critical categories for data capture, and now it is time to collect data on individuals' experiences living with the pandemic, whether you have COVID-19 or not. We want to make sure that data from those of us who live with genetic conditions are in the WHO analysis. If you would like to be sure your members, patients, participants, and friends are counted there are two ways to invite them. 1) If you are a community or an organization of any kind, you can set up a "study" on our platform. This would have your logo on it, and you will receive access to the subset of data coming from your community. To see what this is like,

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